Call for Proposals 2021: European Joint Programme on Rare Diseases (Social Sciences and Humanities Research)

The aim of the call "European Joint Programme on Rare Diseases (EJP RD) 2021" is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.

Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease

The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.

Topic: Social sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease

Research proposals should cover at least one of the following areas

Health & social care services research to improve patient and familial/household health outcomes
Economic Impact of Rare diseases
Psychological and Social Impact of Rare diseases
Studies addressing the impact/burden of the delay in diagnosis and of the lack of therapeutic intervention.
e-Health in rare diseases: Use of innovative technology systems for care practices in health and social services
Development and enhancement of health outcomes research methods in rare diseases
Effects of pandemic crisis and the global outbreak alert and response on the rare disease field, and the emergence of innovative care pathways in this regard.

Other research topics are possible as long as they focus on SSH research and are not in the excluded topics list.